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Income: A Framework for Conceptualizing the Career Development of
Persons with Disabilities
Scott Beveridge, Sharon Heller Craddock, James Liesener, Mary Stapleton,
and David Hershenson
Rehabilitation Counseling Bulletin
VOLUME 45, NUMBER 4,
Summer 2002
Copyright© PRO-ED, Inc.
Reprinted with permission
Existing theories of career development
have been criticized in the rehabilitation literature for having
questionable applicability to persons with disabilities. Given the
diversity of disabilities and of persons with disabilities, the authors
doubt that a generally applicable theory can be developed. They propose
a viable alternative to guide rehabilitation counseling practice: a
framework that posits that the career development of individuals
(including those with disabilities) at any given point in their lives
can be classified into one or more statuses, each of which calls for
different interventions. These statuses form the acronym INCOME:
Imagining, informing, Choosing, Obtaining, Maintaining, and Exiting.
The purpose of this article is to propose
a framework for conceptualizing career development that is applicable to
persons with disabilities. Conte (1983) pointed out that no existing
theory of career development adequately took into consideration the
particular needs of persons with disabilities. Consequently, these
theories were of questionable use in describing, predicting, or
facilitating the career development of persons with disabilities. Both
Conte and Curnow (1989) indicated there were three factors in the lives
of persons with disabilities (particularly persons with precareer onset
disabilities) that rendered existing theories inapplicable to them: (a)
limitations in early career exploratory experiences, (b) limited
opportunities to develop decision-making abilities, and (c) a negative
self-concept resulting from societal attitudes toward persons with
disabilities. Over the past: decade, several attempts have been made to
create a process model of career development that would address these
issues (Hershenson & Szymanski, 1992; Szymanski & Hershenson, 1998;
Szymanski, Hershenson, Enright, & Ettinger, 1996). We would like to
suggest an alternative model that we believe addresses these issues and
is more directly applicable to guiding rehabilitation counseling
practice.
We concur with the conclusions of the
aforementioned studies that there is neither the need nor the
possibility for a separate theory of career development for persons with
disabilities. This follows from Thomas and Berven's (1984) observations
that (a) there is greater diversity among persons with disabilities than
between them and persons without disabilities, and (b) the heterogeneity
of persons with disabilities precludes the possibility of a single
theory common to them all. Our conclusion also follows from our review
of definitions of career development, which indicated that there was a
lack of agreement on a definition of the construct. For example, the
National Career Development Association's (2000) definition of career
development concerned "the nature and significance of work in the total
lifespan" (definition of terms section, paragraph 2). McDaniels (1996),
however, argued that the definition must include leisure as well as
work. Pietrofesa and Splete (1975) noted that, "Career development is an
ongoing process that occurs over the life span and includes home,
school, and community experiences related to an individual's
self-concept and its implementation in life style as one lives life and
makes a living" (p. 4), and Peterson, Sampson, and Reardon (1991)
defined it as "the implementation of a series of interrelated career
decisions that collectively provide a guiding purpose or direction in
one's work life" (p. 21). After reviewing more than 20 definitions of
career development in the literature (and several books on the topic
that failed to define the term), we felt that the one that best served
us as a working definition was Kroll, Dinklage, Lee, Morley, and
Wilson's (1970):
Career development denotes the lifelong sequence and pattern of an
individual's work-related behavior, including all work-relevant experiences
and activities before and after entry into a formal occupation. Career
development is a continual process of working out a synthesis or compromise
between the self and the reality opportunities and limitations of the
world. (p. 11)
Given this lack of agreement on even the
scope of the term career development, it is not surprising that a review
of the status of career development theory by Patton and McMahon (1999)
found that "conclusions within the literature generally agree that it
remains inadequate and incomplete ... and lacking in comprehensiveness
and coherence ... particularly in its failure to account for diversity
within the population" (p. 5).
Despite these conceptual and
methodological problems,, there is still a need for a conceptual
framework to guide rehabilitation counselors in tracking and
facilitating the career development of persons with disabilities. To
address that need we propose the following framework. INCOME consists
of' six statuses through which the person with a disability can move:
Imagining, informing, Choosing, Obtaining, Maintaining, and Exiting. In
constructing this framework, we drew particularly from the work of those
theorists who sought to make their models applicable to persons with
disabilities. These include Donald Super (1957, 1990), who, to his great
credit, included a chapter titled "Disabilities in Vocational
Development" in his 1957 book; Danley and Anthony's (1987)
choose-get-keep model for psychiatric rehabilitation; and the work
adjustment models of Lofquist and Dawis (1969; Dawis & Lofquist, 1984)
and of Hershenson (1996a, 1996b).
Following Helms's (1995) use of the term,
we are proposing a set of statuses, not stages. The concept of stages
within developmental theories denotes a set of characteristics that have
been outlined by Kohlberg (1968). According to Kohlberg, stages must
follow an invariant sequence, be qualitatively different from each
other, refer to general characteristics, represent hierarchical
integrations, and be universal. With statuses, however, there is no
necessary implication that one must achieve each status before moving on
to the next one. One can skip or revisit statuses, and they may recur in
any order. A person can be in more than one status at the same time, for
example, choosing a different occupation while maintaining a job in one
occupation. Logically, however, the first time an individual enters each
of these statuses, he or she must have gone through all of the preceding
ones at least once. For example, one cannot maintain a job until one has
obtained it. One may, however, have obtained several jobs before
maintaining one of them. In each status, one must consider the
interaction of three factors: the individual, his or her environment,
and the general culture and subcultures within which the other two
factors are located (Vondracek, Lerner, & Schulenberg, 1986). It might
be noted that in the last iterations of his five-stage model of career
development, Super (1990) introduced the idea that one could recycle
through stages. Although this addition to his model achieves some of
what we believe needs to be added to stage models, it does not free them
of the characteristics that Kohlberg listed. We therefore believe that a
change to a status model is needed to best represent the realities of
career development, particularly that of women, members of minority
groups, and persons with disabilities.
Although our focus is on persons with
disabilities, we have sought to develop a framework for conceptualizing
career development that is also applicable to persons without
disabilities, members of minority and majority groups, and both women
and men. In applying this framework to persons with disabilities, we
have concluded that three distinct subgroups undergo essentially
different career development processes and therefore must be discussed
separately within each status: those with precareer-onset disabilities,
those with midcareer-onset disabilities, and those with episodic
disabilities (e.g., multiple sclerosis or bipolar disorder). More is
known about variables affecting the career development of persons with
precareer-and midcareer-onset disabilities than of persons with episodic
disabilities because separating these disabilities as having distinct
characteristics is a new concept. In our discussion of these categories
of disabilities within each status, the information regarding persons
with episodic disabilities thus will necessarily be the most tentative
and the least detailed. When considering episodic disabilities within
each status, however, it is important to consider the possible
cumulative impact of exacerbations or the progression of an episodic
disability on the person (e.g., self-efficacy beliefs, work motivation,
general endurance, psychological reserve), on the work environment
(e.g., material resources, accommodations, social supports), and on the
employer and co-workers (e.g., adjustments to staffing to meet work
needs, benefits managements, paperwork, costs, concerns related to the
person's future work capacity).
We shall now define the six statuses of
the INCOME framework; discuss particular issues in each status for
persons with precareer-onset, midcareer-onset, and episodic
disabilities; and suggest issues or strategies of intervention with
persons in that status. Interventions specific to persons with precareer-onset,
midcareer-onset, or episodic disabilities are included in the discussion
of these three subcategories. General principles of intervention for
that status are presented following that.
IMAGINING
Imagining is the status in which the
individual comes to the realization that there are occupations; the
realization that work, jobs, or careers exist; or the realization that
jobs exist of which he or she was formerly unaware. This status has
three substatuses: awareness, fantasy, and reality-based imagining. As a
child, the individual becomes aware through his or her interaction with
the environment that jobs, occupations, and careers exist. In early
childhood, the immediate family has the most impact (Hershenson, 1996a,
1996b; Roe, 1956). Children then begin to learn about the world of work
through the media and through school. By observing inidividuals in their
immediate environment, children discover that people engage in certain
activities in order to make money, buy things, and define themselves.
Using the mechanism of social learning (Bandura, 1986), children observe
the reactions of people in their environment and begin to form attitudes
about work and careers. While in this status, children begin to give
meaning to and develop values about the concepts of work and career.
They begin to develop attitudes about work salience, work goals,
societal norms concerning work, and work definitions (Szymanski et al.,
1996). Imagining continues or recurs throughout an individual's life
span (e.g., adult career daydreams), but its foundation is rooted in
early childhood experiences.
Precareer-Onset Disabilities
According to Conte (1983), individuals
with precareer-onset disabilities have limited career-related
opportunities during their development. These limited experiences can
affect the individual throughout his or her career development,
resulting in career indecisiveness (Strohmer, Czerlinski, Menz, &
Engelkes, 1984), vocational immaturity (Lerman & Guilfoyle, 1970;
McHugh, 1975), low self-concept (Bartel & Guskin, 1971), and fewer
perceived career options (Lerman, 1976; Salomone & McKenna, 1982).
The counselor needs to explore the
individual's early developmental experiences with him or her in order to
understand the effects of this critical period on his or her career
development. Did the individual lack relevant experiences? Did this
result in the development of an attitude that he or she cannot work? Did
this result in alienation from the world of work? As a result of this
exploration, the counselor and the consumer can decide on interventions
to minimize the effect of limited early career experiences, such as
pairing the consumer with a role model with a disability or providing
general work experiences through job shadowing or internships. Through
these experiences, the consumer can reassess his or her career attitudes
in an enriched and supportive environment.
Midcareer-Onset Disabilities
Understanding how the individual with a
midcareer-onset disability conceptualizes work and how his or her
attitudes were formed can be critical to vocational rehabilitation. The
counselor should explore the individual's attitudes about work and
career and her or his breadth of knowledge about careers (i.e.,
knowledge of various careers, perceived capability to pursue various
career paths). It is essential to understand the meaning that the
individual gives to disability while in the Imagining status. Does the
individual believe that having a disability means that he or she cannot
work or that it obviates certain career paths? How does the meaning that
the individual gives disability influence his or her ability to
visualize him- or herself as capable of working? The attitudes and
expectations resulting from this meaning need to be explored.
It is also necessary to explore the
messages about having a disability that the individual receives from his
or her environment and the surrounding culture. This information guides
the counselor in developing both client-focused and environmental
interventions. At times the environment sends either direct or indirect
messages that prevent the individual from imagining. Thus, it is
sometimes necessary for the counselor to work outside of the traditional
dialogistic role to effect environmental change (e.g., through advocacy
or consulting with client-support systems).
Episodic Disabilities
The impact of episodic disabilities is
that each significant functional change in the individual's disability
has the potential to have a similar effect to that of acquiring a
midcareer-onset disability. It is important to understand the effect of
each episode or change in functional abilities on the individual's
attitudes about work, disability, and their interaction. Long-term
availability of services is crucial for the individual with an episodic
disability. The role of the counselor of clients in the Imagining status
is to encourage them to think about work and occupations, the place of
these concepts in their lives, and how the meanings they give these
concepts are affected by the person's disability.
INFORMING
Informing is the status in which the
individual acquires information about him- or herself, the world of
work, existing opportunities, and his or her cultural context. This
status includes both the individual's development of work competencies (Hershenson,
1996b) and the acquisition of information about the self, the world of
work, and cultural supports and barriers. The interaction of these
factors and the messages obtained from the environment result in the
individual's development of career self-efficacy (Bandura, 1986, 1997;
Hackett & Betz, 1981). This results in the individual's filtering the
information to which he or she is exposed based on his or her resultant
perceptions about what is and is not possible. Information that is
congruent with the developing career self-efficacy of the individual
will be accepted and incorporated into his or her career self-image.
Information that is incongruent will tend to be discounted, even if: it
reflects positive work competencies or opportunities.
While in the status of informing,
individuals build on their understanding of the existence of careers
that resulted from Imagining. They begin to explore and gather
information about the requirements, characteristics, and benefits of
various careers. Individuals go through various processes of "trying on"
different careers through fantasy, tentative, and realistic phases
(Super, 1953). During this experimental process, individuals compare
their self-knowledge of their work competencies and work values with the
requirements, characteristics, and benefits of the different careers.
According to Hershenson (1996b), individuals begin developing work
competencies in early childhood through their successes and failures in
their interactions with their environment. Work competencies include the
person's work habits, physical and mental skills that are applicable to
jobs, and interpersonal skills (Hershenson, 1996a, 1996b). In addition
to developing skills, individuals begin to develop an understanding of
their physical and cognitive abilities from the feedback that they
receive from their environment.
Throughout this process of acquiring
skills and information, individuals receive feedback from their
environment (e.g., through parents, peers, grades in school subjects).
Based on this feedback, individuals form beliefs about both their
abilities and existing opportunities. The individuals' knowledge about
their own abilities, knowledge of careers, beliefs about their
capabilities to fulfill career requirements, and beliefs that their
abilities will not be blocked by environmental or attitudinal barriers
result in the career self-efficacy. This formulation of career
self-efficacy is based on Bandura's (1986, 1997) theory, as applied to
career development by Hackett and Betz (1981). Thus, career
self-efficacy is determined by the complex interactions of individual
characteristics, environmental characteristics, and cultural
characteristics.
The career self-efficacy that is
developed through environmental feedback will serve as a strong
predictor of the individual's career path (Hackett & Betz, 1981; Hackett
& Bryars, 1996; Lent, Brown, & Larkin, 1986; Nesdale & Pinter, 2000). If
the individual believes that he or she is not good at math, then he or
she will not pursue physics or engineering, even if these careers match
the individual's interests and values. If the individual believes that
discrimination will prevent him or her from becoming a professor or a
police officer, then he or she will be less likely to pursue these
careers. The individual's career self-efficacy thus serves as a career
gatekeeper.
Precareer-Onset Disabilities
The limited career experiences identified
by Conte (1983) and Curnow (1989) typically leave individuals with
precareer disabilities with significantly less information about
themselves and careers. It typically is necessary for counselors to use
both formal and informal techniques to help individuals with precareer
disabilities in exploring interests, needs, values, abilities, skills,
and the world of work.
In addition, individuals with precareer
disabilities may experience segregation, stereotyping, and low
expectations (Curnow, 1989). They thus may develop a low career
self-efficacy and limit the information that they incorporate. This
theory is supported by research indicating that individuals with
precareer disabilities have lower self-esteem (Curnow). In fact,
according to Conte (1983), the "professional may actually hinder the
vocational development of disabled persons by contributing to the
process of stereotyping and segregating disabled persons" (p. 322). To
assist the individual in increasing his or her self-efficacy, the
counselor needs to focus on the individual's strengths, provide
opportunities for success, and assist the individual in confronting
prejudice and discrimination.
Midcareer-Onset Disabilities
Typically, it is stated that the best
predictor of an individual's postdisability career development is his or
her premorbid experiences. We believe this is an oversimplification.
Although this is a critical factor, we propose that it is the
interaction of these experiences with the meaning given to disability
regarding his or her capabilities, resulting in career self-efficacy,
that best predicts the career development of the individual with a
midcareer disability. According to Bandura (1986, 1997), perceived
self-efficacy beliefs are derived from information and feedback received
through four processes: actual performance, vicarious experiences,
verbal persuasion, and physiological cues. The role of the counselor
therefore is to provide interventions involving these processes that are
aimed at assisting the individual in developing self-efficacy beliefs
that are consistent with the realities of his or her abilities and the
context of his or her environment. This may require family or
environmental intervention as well as individual interventions.
Episodic Disabilities
For the individual with an episodic
disability, it is important to examine the effect of each exacerbation
or change on the individual's career self-efficacy. Assisting the
individual in developing problem-solving skills and informing him or her
of available accommodations before they are needed are useful strategies
that can result in the individual's maintaining his or her career
self-efficacy through exacerbations or changes in functionality.
Accomplishing this requires continued access to services over time. The
role of the counselor of clients in the informing status is to
facilitate the individual's exploration of self; occupations; realistic
options; and the impact of the environment, culture, and disability on
the individual.
CHOOSING
Choosing is the status in which the
individual integrates the information from the previous statuses and
selects from among the known occupations. This status and the following
two (Obtaining and Maintaining) were suggested by Danley and Anthony's
(1987) choose-get-keep model. Multiple factors interact during this
status that affect the ultimate decision or direction of career
development. Occupational choice is predicted by the interaction among
the information possessed by the individual, the fit between personality
and environment type, the fit between the individual's needs and the
job's perceived benefits, the individual's decision-making style, and
chance. The breadth and depth of information obtained by the individual
during the previous statuses influences this status. The ability of the
individual to choose a career that matches his or her personality,
needs, and abilities is dependent on this information. The individual's
career self-efficacy also influences career choice by filtering the
information that: the individual has incorporated about him- or herself
and the world of work.
The most widely researched and used
factor to understand and assist career choice is the fit between the
individual and the work environment. According to Holland (1985), an
individual's career decisions and outcomes are predicted by the fit
between the individual's personality type and the occupation's
environment type. Personality and environment can be categorized into
six corresponding types: realistic, investigative, artistic, social,
enterprising, and conventional. Congruency between personality and
environment types results in greater career satisfaction and
satisfactoriness (Holland).
In addition to person-environment fit,
there are several other factors that can have an equal amount of
influence on career development. One of these factors is the
individual's work goals, which are tied to work motivation (Hershenson,
1996b). According to Maslow (1987), there is a hierarchy of needs that
accounts for the direction of an individual's motivation. At the bottom
are basic needs, such as food and shelter. Until these needs are
satisfied, the individual is not motivated to satisfy higher needs. At
the top is self-actualization, which is the focus of the individual once
all lower-order needs have been satisfied. Holland's matching theory is
most applicable for those needs near the top of Maslow's hierarchy. For
individuals addressing needs that are low on the hierarchy, work goals
will be determined less by personality type than by concrete needs
(money, shelter, day care, hours). The effect of the environment on
these needs, through oppression and systematic discrimination, can be an
important variable in this status. For individuals with disabilities,
understanding his or her needs and their relationship to disincentives
related to social security, housing, and medical care is crucial.
Finally, the individual's decision-making
style (Herr & Cramer, 1996; Krieshok, 1998) greatly influences this
status. Previous explanations of the Choosing status generally assume a
logical decision-making approach; however, this is not how all
individuals make decisions. For some individuals, family is a critical
factor. Others rely on intuition or impulse. Chance can also play a
pivotal role. These decision-making styles can be placed into a
tripartite typology: two inner-directed types (rational and emotional/
impulsive) and one outer-directed type (accidental/ compliant; modified
from Arroba, 1977).
Precareer-Onset Disabilities
For the individual with a precareer
disability, the lack of early career experiences can have a negative
effect on Choosing. Not only does this lack of relevant experiences
limit the information from which decisions are made and decrease
self-efficacy, it also results in limited early decision-making
opportunities (Conte, 1983). This limited decision-making practice has
been found to be correlated with social immaturity and indecisiveness
(Curnow, 1989). The counselor needs to assess the self- and career
knowledge of the individual with a precareer disability, and he or she
may have to use and develop techniques to increase this information.
However, the practitioner must be careful not to contribute to the
segregation and discrimination of the individual with a precareer
disability through either the measures and assessments used or the
information provided. In addition, the individual's self-efficacy needs
to be supported throughout the decision-making process. It may be
necessary to teach the consumer a decision-making model.
The counselor needs to take the time to
uncover and understand the individual's work goals. What are the
individual's needs and disincentives (Berkowitz, 1987; Stone, 1984;
Warner & Polak, 1995)? The practitioner's shortsightedness on these
issues can cause him or her to wrongly mislabel the individual as
indecisive, resistant, or lazy. Understanding the person in context is
crucial during the Choosing status. Sometimes, not working is the only
viable career decision at a certain point in time. In such instances,
the focus shifts to preparation for the future.
Midcareer-Onset Disabilities
For the individual with a midcareer-onset
disability, understanding the meaning of disability to the individual
and his or her needs is critical. Although this is important for all
disability groups because it influences career self-efficacy, it may be
of greater importance for an individual who must change his or her
self-concept because of an acquired disability. The fact that a person
can still functionally perform a job may be negated by the belief that
having a disability means he or she cannot work. Again, understanding
career self-efficacy is necessary and needs to be explored with the
individual. Information and decision-making skills alone may not be
enough if self-efficacy is low. Understanding the person in context is
important for the individual with a midcareer disability as well.
Intervention,; need to focus on increasing self- and career knowledge,
increasing self-efficacy, increasing decision-making skills, and
minimizing disincentives and environmental barriers.
Episodic Disabilities
Each exacerbation or change in
functioning can alter the individual's career path and require a return
to the Choosing status. Learning self-advocacy skills and
self-accommodation skills can lessen the effect of each change or
exacerbation. Exploring the effect of changes or exacerbations on the
consumer's definition of his or her disability is necessary, as is the
assurance that services will be available on a long-term basis. The role
of the counselor of clients in the Choosing status is to facilitate the
client's decision-making process and clarify the effects of the person's
disability on this process.
OBTAINING
In the Obtaining status the client
implements his or her career decision and obtains a job. Obtaining
employment is similar to Salomone's (1982) fourth stage, which calls for
the implementation of a career decision involving job placement or
starting one's own business. Securing employment is recognized as a
critical outcome of the vocational rehabilitation process. Information
from the 1990 Census (U.S. Bureau of the Census, 1992) showed that 60.6%
of adults with disabilities were not participating in the workforce. A
recent survey of Americans with disabilities (National Organization on
Disability, 2001) found that two thirds of individuals with disabilities
who were not working wanted to work. These findings suggest that
obtaining employment can be particularly difficult for people with
disabilities. People with disabilities face several additional barriers
to obtaining employment, including discrimination and negative attitudes
that some employers have, job search and transportation difficulties,
and the need for support services (e.g., day care, medical/
psychological treatment, work adjustment counseling; Salomone & McKenna,
1982; U.S. Department of Justice, 1992; West, 1995). The principle of
nondiscrimination on the basis of disability has been established by the
American with Disabilities Act (ADA), but the existence of the law
itself does not guarantee compliance or resolve the problem of
employment discrimination.
The environment plays a role in the
Obtaining status in other ways. The economy strongly influences the
availability of jobs in the labor market for all people, but
particularly for those in marginal jobs. Miller (1999) indicated that
for persons with disabilities and for members of other marginalized
groups, both the reality and the individual's perception of the
occupational opportunity structure are frequently more important
considerations in career development than the person's interests,
values, or abilities (i.e., the factors usually focused on in career
counseling). The person's family, culture, and society must also be
considered as important environmental influences during the Obtaining
status. The person's family situation as it relates to employment (e.g.,
conflicts that may impede work attendance, childcare issues,
transportation issues, family values, goals), cultural attitudes that
may clash with work attitudes and behaviors (e.g., punctuality), and
societal attitudes (e.g., prejudice against persons with disabilities)
will influence a person's participation in the labor market.
The career choice made in the Choosing
status remains only a decision until the person obtains a job. The
process of obtaining a job may involve one or more of three approaches:
independent job search, assisted job search, and arranged job search.
The traditional independent job search involves contacting as many
employers as one can by sending out resumes, contacting employers via
telephone, applying directly to companies, and using other sources of
job leads (e.g., newspaper ads, employment agencies). An independent job
search is a full-time job and may prove to be the hardest work one will
do. An assisted job search means that the person with a disability has
the assistance of a professionally trained counselor in researching and
assessing the available job opportunities (e.g., job analysis, job
modification, accommodation). The counselor can make recommendations for
reasonable accommodations to allow the person to return work. The
counselor could assist the individual in researching organizations and
employers that would hire people with disabilities who have similar
occupational skills, goals, and values. The counselor can also provide
job-seeking skills training, including counseling on resume development,
completion of applications, and job-interviewing skills training. An
arranged job search can take many forms, such as a family member
obtaining employment for another family member, a supervisor
recommending someone for an employment opening, or a counselor using his
or her employer contacts to arrange for the placement of a client. In
today's labor market, only a minority of job openings are publicized;
the majority of them exist in a "hidden labor market" that the counselor
can help the consumer to access.
Precareer-Onset Disabilities
Bolton (1975) found that most persons
with precareer-onset disabilities had little or no exposure to career
opportunities during their developmental years, which had a negative
effect on their career development. Super (1994) indicated that a
precareer-onset disability is incorporated into the person's developing
self-concept. Early dependency experiences thus may make a person fear
exposing him- or herself to competition or to chances of failure during
job search. A lack of career experience and environmental influences
will make obtaining employment more difficult. The counselor can work
with the client to design interventions to minimize the effect of
limited early career experiences and opportunities and to maximize
exposure to vocational issues (e.g., selective placement, transitional
employment, supported employment). The counselor can also advocate for
accommodations and the removal of environmental barriers.
Midcareer-Onset Disabilities
Super (1994) indicated that a midcareer-onset
disability disrupts a person's career. The newly acquired disability is
disorganizing because it must be incorporated into a person's already
established self-concept. Through reality testing, the person must find
a role in which he or she can meet social expectations and satisfy his
or her goals and aspirations. The counselor should explore a person's
attitudes and beliefs about his or her disability and how this will
affect his or her capacity to work. Does the disability preclude a
return to the labor market? It is also very important to examine the
person's environment to assess the physical barriers and accommodations
required. The counselor will work with the client, using interventions
(e.g., transferable skills assessment, retraining) that aim to minimize
the disruption the disability has on the person's career, self-concept,
and self-efficacy.
Understanding how the person
conceptualizes his or her capacity to work is very important. The
rehabilitation counselor must strive to understand the meaning the
individual gives to the disability and how this will affect efforts to
obtain employment. In addition, in some mid-career-onset situations
there may be secondary gain issues (e.g., workers' compensation, fear of
losing Social Security Disability Income benefits) that may play a role
in determining if the person will return to the workforce.
Episodic Disabilities
For a person with an episodic disability,
each exacerbation or change in the person's functional capacity has the
potential to preclude a return to work in the previous occupation. This
may require him or her to revisit the Imagining, informing, or Choosing
statuses if there is a need to change occupations. The counselor must
understand what effects an exacerbation or change in a person's
functional capacity may have on his or her employment status and
motivation for work.
The availability of follow-up services to
ensure a smooth adjustment in returning to the workforce is a necessary
consideration for a person in this status. These services can take many
forms, including child support, day care, transportation issues, medical
issues, psychological issues, work adjustment counseling, further
accommodations, and so forth. Some people would not return to the
workforce without these types of services.
MAINTAINING
The Maintaining status involves the
process of adapting to, performing, and sustaining a career. This status
can be likened to Super's (1994) maintenance stage, as they are both
dynamic; however, maintaining a career also includes components of the
person-environment interaction (PE) theories, which stress that "The
process of the PE fit is reciprocal, involving the individual shaping
the environmental context and the environment influencing the
individual" (Rounds & Tracy, 1990, p. 18). As Kroll et al. (1970) noted,
maintaining is a continual process of working out a synthesis or
compromise between the self and the reality, opportunities, and
limitations of the world. In the INCOME model, the work environment and
the cultural context can enhance or block success in this status.
In the Maintaining status, the
individual's ability to keep and perform the job is dependent upon a
successful synthesis between the individual and the work environment. In
order to maintain a job, he or she must adjust to the work demands, and
the work environment must adjust to the individual. Ultimately, success
will be a function of the dynamic interaction between the two
components. Hershenson's (1996b) theory of work adjustment provides a
meaningful framework within which to understand the demands of this
status. He indicated that work adjustment involves "work competencies,
which consist of work habits, physical and mental skills applicable in
work, and interpersonal skills applicable in the work setting" (p. 442).
A person with a disability will need to understand the impact of his or
her functional limitations on the essential requirements of the job,
including physical abilities, cognitive abilities, and interpersonal
skills. This knowledge will enhance self-efficacy and improve
interpersonal communication in the workplace. Despite the enormous
amount of time and energy spent imagining, gathering information,
analyzing job tasks, and choosing and obtaining an occupation, the
reality of the work environment may require unforeseen adaptations. The
individual must have a carefully developed plan for disability
management that takes into consideration such issues as transportation;
time management; medication management; and physical, cognitive, and
emotional endurance. The day-to-day challenges of the work environment
may create stresses, which the new or returning employee with a
disability must consider.
Precareer-Onset Disabilities
An individual with a precareer
developmental disability may have had family support for transportation
and daily planning. On the job, however, the individual will be held
personally responsible for returning on time from breaks, preparing for
meetings, or attending required training. The presence of "learned
helplessness" (Peterson, Maier, & Seligman, 1993) may represent a
problem in this status. The use of natural supports is a recommended
strategy for maintaining successful career adaptation and performance.
The term natural supports has been used in the literature to describe
the collaboration of co-workers who serve as peer mentors on the job to
assist the new or returning employee (Nisbet, 1992; Nisbet & Hagner,
1988). They may be invaluable in providing the best approach to problem
solving in the workplace. For example, a mentor may provide guidance on
prioritizing job tasks to improve time management and minimize stress
during the first few weeks on the job. This type of support is less
intrusive and lessens any potential stigma attached to a traditional job
coach who is a part of a rehabilitation service. Job coaching may be the
more likely approach with persons with precareer disabilities, but we
suggest that the natural support approach be considered as well. It
would lessen or displace the effect of a weak sense of self-efficacy
learned earlier in life. Technological interventions may also serve to
create a feeling of independence.
Midcareer-Onset Disabilities
A person with a midcareer-onset
disability may need to educate an employer about the meaning of
reasonable accommodations if he or she plans to return to the same job.
For example, options such as restructuring job responsibilities,
modifying work schedules, modifying equipment and devices, and using
training materials may need to be negotiated. These accommodations may
ease the return to work and increase the likelihood of maintaining an
existing career path. A strategy that may be effective in enhancing the
work environment to fit the needs of a returning employee is a
quick-response team approach. A quick-response team consists of a group
of rehabilitation professionals who can respond immediately to a crisis
in the work setting that threatens continued employment. For example, an
occupational therapist can be consulted about ergonomics at a
workstation before productivity suffers. A technology specialist can
suggest computer adaptations for a person who experiences a visual or
physical exacerbation of a disability. Also, a substance abuse counselor
can be consulted when relapse threatens an employee. It has been our
experience that timely intervention can short-circuit the development of
a much more significant problem that would result in the loss of a job.
Episodic Disabilities
Falvo (1991) noted that even with
appropriate treatment, residual symptoms, deficits, and impairments may
occur with episodic disabilities, along with periodic relapses that
result in recurrence of symptoms. Persons with psychiatric disabilities
may need to self-monitor the side effects of required medication, which
could cause job-related problems. Job stress in the Maintaining status
may exacerbate symptoms in a fairly stable employee or precipitate
relapse in a recovering substance abuser or person with serious mental
illness. Stress may result in deterioration of the interpersonal skills
necessary for the maintenance of employment. Ongoing support from a
rehabilitation specialist may be necessary whenever problems occur at
work, long after successful placement has occurred. Rogolsky and Little
(1993) found that an inability to handle work-related stress and demands
is frequently more limiting than either physical or cognitive
disabilities.
Developing effective interpersonal skills
on the job is critical to maintaining employment. Support, whether in
the form of traditional supported employment models such as job coaches
or natural supports (Nisbet & Hagner, 1988), must address work-related
interpersonal skills. Hershenson (1996b) stressed the need for
"responding appropriately to supervision and getting along with
coworkers and others encountered in the work setting" (p. 442). This may
indeed make or break this status of career development.
There are general considerations that are
important during the Maintaining status of the INCOME framework. These
are applicable regardless of the type of onset of an individual's
disability. The person with an invisible disability may need to decide
how, when, or even if, to disclose the nature of the disability to
supervisors and co-workers (ADA Information Center, Mid-Atlantic Region,
2000; U.S. Department of Justice, Civil Rights Division, 1991). This is
an important issue that may affect interpersonal relations and possibly
have legal implications. Disclosure should be considered during the
first several weeks of employment, particularly if the need for
accommodations to job requirements is likely to become obvious to
co-workers.
Support groups are common while the
individual is receiving direct rehabilitation services but less so when
the individual is working. The counselor could initiate groups at the
workplace, after hours, or at lunchtime. Persons with disabilities can
be a significant resource to each other in the workplace. The focus
could be on sharing problems and solutions that individuals with
disabilities have discovered as they enter, or return to, the workplace.
Ideally, peers would run these groups, and rehabilitation professionals
would consult or provide requested expertise on ADA, accommodations, and
attitudinal barriers in the workplace. The groups could be held in the
community as well.
According to some models of vocational
rehabilitation, once a job is obtained, the goal has been achieved. If
an individual with a disability maintains employment for a predefined
time (e.g., 60-90 days), the placement is regarded as a success. In the
INCOME model, however, maintaining a career is a dynamic and adaptive
process and not necessarily the end point of the vocational
rehabilitation process. Continuing support provided by the
rehabilitation counselor is critical to maintaining employment during
this status. Hagner, Fesko, Cadigan, Kiernan, and Butterworth (1996)
stated, "Following successful employment negotiation and procurement of
a job, the need for follow-along support to ensure adjustment for
employees with disabilities has been a recognized need" (p. 326). These
maintenance services may include resolving work adjustment issues,
redesigning a job, or retraining as job needs change.
Rehabilitation policy in both the public
and private sector must embrace the concept of long-term support for
persons with disabilities to maintain employment after a successful
placement is achieved. The system of service provision must be
responsive to providing services, resources, information, and
consultation to persons with disabilities through all career-development
statuses. Bolton (1981) emphasized that rehabilitation agencies must be
prepared to offer supportive services of lifelong duration to ensure
continued employment success. We add the observation that resources to
permit agencies to do so must first be made available.
EXITING
Exiting, or the process of leaving one's
current vocational situation, is the final component of the INCOME
model. The Exiting status is not, however, the final step in the INCOME
model. Exiting encompasses not only getting fired or retiring but also
being promoted or departing voluntarily from one's present position to
enter new work settings or nonwork experiences. Several factors may
influence an individual's desire or decision to exit, the first of which
are worker satisfaction and work goals. This model posits a dynamic
interaction between work goals and worker satisfaction (i.e., worker
satisfaction influences work goals, and work goals influence worker
satisfaction). We further speculate that an individual's present level
of focus in Maslow's hierarchy of needs influences worker satisfaction
and work goals. For instance, an achieved work goal of becoming
financially stable may be replaced by one that satisfies a higher-level
need, such as self-actualization. Neither work goals nor worker
satisfaction are static; rather, they are dynamic concepts subject to
change throughout a person's lifetime. These concepts are potentially
influenced by psychological, environmental, and cultural context
factors, of which more than one may be operating simultaneously. This
idea has been discussed by Hershenson (1996b), who described worker
satisfaction as "involving gratification resulting from one's work,
which is primarily related to the work goals of the person and the
rewards and opportunities in the work setting" (p. 443). Dawis and
Lofquist (1984) also touched on the relationship of worker satisfaction
in terms of a correspondence described as "the individual fulfilling the
requirements of the work environment and the work environment fulfilling
the requirements of the individual" (p. 54). Connecting these concepts
to the decision to exit, Dawis and Lofquist stated that "when the
requirements are not met, the individual or the environment moves to
change or terminate the interaction" (p. 56). In sum, changing work
goals or needs may lead to changes in worker satisfaction, which may
influence an individual's decision or desire to exit.
Other factors may also influence the
decision to exit. We believe that a high level of self-efficacy is
needed to change career paths. An increase in self-efficacy may
strengthen a person's belief that he or she can switch career paths,
therefore leading to thoughts and/or decisions to exit. As stated
earlier, reaching a higher level in Maslow's hierarchy of needs may also
influence a person's desire to exit. For example, if an individual's
primary concern is no longer to maintain shelter, food, and safety, he
or she may wish to find an occupation that lends itself to facilitating
self-actualization. Additionally, having achieved financial security (a
lower level on Maslow's hierarchy), an individual may wish to exit to
begin a family (a higher level). Finally, an exit may not be voluntary
(i.e., because of demotion, firing, or changing physical conditions).
Involuntary exiting for people with disabilities may include
discrimination-based firing, intolerable negative attitudes in the
workplace, and deteriorating physical conditions leading to an inability
to perform the essential functions of the job. This does not mean that
the career for the person with a disability is over; in fact, it may
just be beginning.
A person may exit a number of times
during his or her lifetime. Furthermore, every time exiting or the
desire to exit occurs, the need to revisit previous statuses may arise.
It is possible for an individual to be in more than one status
simultaneously. For example, a person may return to Imagining while
Maintaining and considering Exiting. We advocate that rehabilitation
clients should be taught how to negotiate these statuses so that they
may engage in them independently and successfully without having to
reenter the rehabilitation system.
Precareer-Onset Disabilities
A desire for people with precareer-onset
disabilities to exit may result from an increase in self-efficacy. As
stated earlier, Conte (1983) argued that persons with early-onset
disabilities had limited career-related opportunities during
development, which led to, among other things, low self-concept and a
lack of a sense of confidence. As an individual with precareer-onset
disability moves through the rehabilitation process and gains more
experience in work-related settings, it is hoped that his or her sense
of self-efficacy will improve. Consequently, his or her tendency toward
switching career paths may increase.
Possible interventions for persons with
precareer-onset disabilities may include implementing exercises designed
to promote the development of self-efficacy. In addition, exposure to
career options and information beyond a consumer's current level is
recommended. Finally, providing a multitude of experiences in which the
individual is given the chance to explore and the right to fail will
further facilitate career development.
Midcareer-Onset Disabilities
If a disability occurs midcareer, it may
be necessary for the client to exit the current job to obtain a new one.
In this case, the decision to exit may be due to several factors, such
as new functional limitations, a change in work goals and satisfaction
resulting from a psychological life change because of the disability, or
disincentives for continuing in the work setting. The environment may
also play a significant role in the individual's decision to exit. For
example, physical barriers and attitudes of co-workers toward the person
with a new disability may turn a once tolerable and pleasant work
environment into one full of obstacles and discrimination. Whether
accommodations are made with enthusiasm or with resistance may also
contribute to an individual's wish to remain in or exit the workplace.
Possible interventions for individuals
with midcareer-onset disabilities include assisting him or her in
deciding whether to remain in his or her current place of employment. If
the decision is to stay, the counselor may need to assist the individual
in exploring and implementing possible accommodations. The counselor may
also need to take on the role of advocate in conjunction with the
consumer. If, on the other hand, the decision is made to exit, the role
of the rehabilitation professional could involve helping the consumer
explore possible alternatives. Supportive counseling may also be needed
to help the consumer accept and adjust to his or her new disability.
Episodic Disabilities
For an individual with an episodic
disability, it may be necessary to exit several times during his or her
career. Each time there is a change in the status of his or her
disability, many things may be affected, such as his or her ability to
perform the job functions, self-efficacy, and work-related satisfaction
and goals. Temporary exits may be particularly necessary because of
short-term hospital stays or the need for rest during exacerbation
periods. New accommodations may be necessary when the person returns to
work, because his or her functional abilities may have changed. To the
extent possible, the consumer should be taught about potentially useful
accommodations before he or she is faced with the need for them. If such
accommodations are not possible or are unacceptable in the existing work
environment, exit to a new work setting may be desired.
Interventions for a person with an
episodic disability may include keeping an open-door policy to assist
the individual as his or her disability changes. Each time the person
experiences an exacerbation of his or her condition, the need for new
accommodations, counseling, and/or reevaluation of current work goals
may be necessary. If work goals change, worker satisfaction may change,
and the person therefore may require counseling or assistance in further
exploration of his or her options. Finally, changes in a person's
disability may coincide with changes in his or her current level in
Maslow's hierarchy. Consequently, there may be changes in worker
satisfaction and work goals leading to ideas of exiting. The
rehabilitation counselor may need to assist the individual through this
status in order to reach a new level of personal understanding and
satisfaction.
CONCLUSIONS
The goal of the INCOME framework is to
guide the application of the various career-development theories based
on the individual's context, needs, values, interests, skills,
abilities, aptitudes, and culture. The benefit of this framework is that
it is infinitely malleable and applicable to most, if not all, people
and maintains a theoretical structure to guide the development and
selection of interventions by the practitioner. The practitioner must
keep in mind that wherever possible the rehabilitation process should
involve working with, rather than for, the client; that is, the
counselor should promote empowerment, not dependency.
It is our hope that the INCOME framework
also stimulates research that will result in an enhanced understanding
of the career development of all persons, particularly those with
disabilities. Although the INCOME framework was developed primarily
through the application of diverse research on career development and
factors influencing the career development of persons with disabilities,
racial/ethnic minority group members, and women, it was also heavily
influenced by the experiences of the authors. In addition, in the
application and modification of existing theories and research, many
logical but untested assumptions were made. Much research thus needs to
be done to validate this framework. Because of its complexity, however,
we recommend that the assumptions be tested separately and that the
validity of this framework be judged based on cumulative research
results. In particular, the assumptions regarding the differential
impact of precareer, midcareer, and episodic disabilities; the
application of social cognitive theory and self-efficacy to persons with
disabilities; and the effect of bias and discrimination on the career
development of persons with disabilities need to be studied.
AUTHOR'S NOTES
(1.) This article was developed in a
seminar led by the last named author.
(2.) The first four author's names are
listed in alphabetical order because all contributed equally to this
project.
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